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Thursday, February 18, 2010

Me and My journey--post 2


We even had to change the way we eat, there are some many things he was not allowed to have.After about a month of going to the center 3 days a week, he woke up one day to find his pillow covered in blood. I really freaked out that day..I took him to the hospital, where the doctor discovered he was very sick. ( see while getting your treatments at the kidney center they have to give you heparin ) The doctors found him to be allergic to heparin, in reality the heparin was eating all his white blood cells, he had turned purple every where. The doctor told me its not good, if his level fails any more he will die. This doctor was a dedicated he would go home and research things to help. This doctor found something he told me this is the last resort we have . They put IVS and gave him this medicine after a month in the hospital he recovered.All of this was taking a toll on my body, there was days I just wanted to sit and cry, but I couldn't do that we had a long road ahead of us. I think even tho I was wearing myself out I really noticed the effects on my body. There was so many times he was put in the hospital for weeks at a time. I wont go into all of that, but that's the start of my depression and I had no Idea, only because I was so concerned and worried, and knowing that I had to be strong . The doctors then decided to place him on HOME DIALYSIS, because of the heparin. Now I really had to learn it was all up to me to do this. He would still go to the kidney center once a month for his treatment update. Doing the treatment at home was nerve wrecking, but I did it. I had to learn how to hook him up to the machine, how to read the machine, what fluids went in and what came out. I had to know how to monitor everything. I had to now what grade of fluid to put on the machine if his blood pressure was up, what to put on if his blood pressure fell. There was so much put on me, I didn't mind doing this.I had sheets of things I had to keep track of. I would take his blood pressure 4 times a day, write it on the sheet along with the fluid out put and the grade of fluid I had use. I kept track of his inventory of supplies and ordered all the things he needed, the bags of fluid, the tubing everything. When we would get the supplies delivered they would bring 96 cases of fluid at a time plus the tubing we needed and the masks to cover our face to keep germs out..wow finding a place for all that was something....Then I had to learn to give him shots, I would give him 3 shots a day..Yuck I never thought I could give a shot I hate needles but , but I did it. We had so many changes with his treatment, we first only had to hook up at night, but his treatments seemed not to be working, we went from 6 hours on the machine to 12 hours every day.

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